Logan James Wilkieson
Today Mummy told me I have a Blog. Good! More toys to be washed! All my clothes and toys have to be washed before I can play with them. I push things out of my cot and then they come back clean.
Mummy said Uncle Phil had put my blog on a machine which people can read. Will it come back clean? Mummy told me Auntie Katie will put my words in to this machine, I hope they don't shrink!
Today I am in a big building with lots of nice people who keep talking and touching me. Mummy says these are nurses, I think I love my nurses. If I smile they come and talk to me, wait until mummy has shown me to blow kisses.
When I was born Mummy and Daddy forgot to give me a gene? This would have stopped me from getting a sore bum, mouth and eyes (Auntie Katie will tell you about this ( Auntie Katie - Logan has inherited a faulty gene, which prevents his own immmune system developing. Until now his body has been able to fight off diseases and germs as it had some of his mum's immune system in him from when he was born. Now this has gone and anything he get such as nappy rash, thrush in his mouth and conjunctivitus, which are all common in babies he cannot fight off) I don't want Gene in this cot with me, Mummy and Daddy look after me good. My Mouth and bum was sore, glad mummy remembered the right cream to put on
I did not like my milk and started to get hungry, Mummy and Daddy and me had to go and see a man who pushed a sharp bit in me and got some red stuff out. Mummy was told we had to go in a van with two men on a drive through the green fields to this building we are in with my lovely nurses.
Mummy and Daddy have told me I have to stay under my machine all the time (Auntie Katie will explain ( Auntie Katie - As Logan has no immune system, therefore no way of fighting off germs he is being kept in a sterile room. He has what looks like a big extractor fan over his area, this ensures the air he is in is sterile.))Mummy has said lots of people will visit me but they will have to stay behind the gate, its like being in a zoo (I don't know what a zoo is, but I have animals in my cot) Mummy said these people might have germs on them I hope these are toys.
Mummy, Daddy and Grandad are the only ones to come into my space, they MUST have clean clothes on and wash before touching me. They wear silly hats and aprons on which I try to get off.
I had to go in a van and go to sleep, when I woke up they had put some toys on my chest. These toys are for putting medicine in me and for taking red stuff out. My lovely nurses come and play with these, mummy and me counted three tubes.
Mummy and Daddy have told me I will lose my hair. This will stop Mummy using the machine that eats Daddys hair on me. Chemo will make me grumpy and poorly but mummy and daddy will be there, and my lovely nurses, after this I will get some more bone marrow (Auntie Katie will tell you, she is getting good at this( Auntie Katie - Logan is currently recieving steroids and antibiotics to get rid of any outstanding infections he has in his body. Once he is clear of infections he will begin a eight day course of Chemotheraphy this will destroy any existing bone marrow he has. He will then recieve a Bone Marrow transplant.))
I will be here for 4 to 5 months and miss my christmas but Mummy and Daddy have said that my birthday will be twice as good with two lots of toys and a party to see all my friends again. I will tell Auntie Katie what is happening to me so she can update my blog?
I hope you will all leave messages for my Mummy and Daddy to read to me.
Hugs and Kisses
Logan
Sunday 2nd December
Daddy back!! New tummy toys on Monday or Tuesday big sleeps again and a ride in my white van. Still do my big bottle out of a machine, I only pulled my tube out two times. Mummy is trying to give me food and bottles, not interested! Toys are better!
Lots of love
Saturday 1st December
Good day today I played on the floor, freedom from my cot!! (Auntie Katie - Letting Logan play on the floor is easier than it sounds! To protect him and all his parahanalia from potential infection the nurses first have to cover his cot and drawer units is protectve sheet to prvent contamination before moving these out of Logans area and placing treated mats on the floor. He is still limited as to the area he can move in as he needs to be constantly under his cooker hood!)
Gardad and Granny here today beause Daddy has to work. Grandad helped with bathtime, I don't like baths because I can't do splashing!
Still feeling tired.
Nighty night
Friday 30th November
my tummy toy are not working again, my tummy is sore where they go in. I have a toy in my foot but I can get that out so Mummy has put a 'big' sock on it. Mummy is brushing my hair, whats left! I will be a baldy soon!!
Nurses had to help Mummy with my bath to keep my foot dry, not easy!
Nite nite don't let the bed bugs bite
180 comments:
hi little man, how cute do you look in your santa outfit im very sorry i havent wrote for a while but ive been very tired just like you as some naughty germs come and got me too and made me poorly it wasnt very nice as ive not been able to see your daddy in case he brought any naughty germs back to you,i am better now though so i hope ill see your mummy and daddy soon and they can tell me lots more about how your getting on.I think your a very clever boy doing two steps all by yourself toni is so proud of you she misses you very very much and draws pictures of you every day she drew one of me in a bubble with you when i was ill with my germs,i will save it to show you its very funny we all love and miss you loads carry on being a good boy coz father christmas is listening xxx ps logan when your mummys not looking take them big socks off and send one with daddy as i think they so big one would be perfect for me to leave for father christmas put my presents in if ive been a gud enough girl x
hi little man, how cute do you look in your santa outfit im very sorry i havent wrote for a while but ive been very tired just like you as some naughty germs come and got me too and made me poorly it wasnt very nice as ive not been able to see your daddy in case he brought any naughty germs back to you,i am better now though so i hope ill see your mummy and daddy soon and they can tell me lots more about how your getting on.I think your a very clever boy doing two steps all by yourself toni is so proud of you she misses you very very much and draws pictures of you every day she drew one of me in a bubble with you when i was ill with my germs,i will save it to show you its very funny we all love and miss you loads carry on being a good boy coz father christmas is listening xxx ps logan when your mummys not looking take them big socks off and send one with daddy as i think they so big one would be perfect for me to leave for father christmas put my presents in if ive been a gud enough girl x
Hello little Logan. I have missed your gorgeous cheeky face while I have been on my holidays from work. I hear your lines have been naughty again. Carn't wait to give you a hug when i'm back at work. Love Jayne your little short nurse friend. x
Hi there,
Just a note to say that I am the person who rang and left my address, phone and email details for you today (Sat 8th Dec). I thought you might like to contact me as my 8 year old son had a BMT nearly 8 yrs ago for Omenn's Syndrome (a SCID).
I knowexactly what a dreadful time you are going through - but HANG ON IN THERE. You WILL get through it.
Logan looks are really cute little chap - what is it with our special boys? - My Robert was a cute baby - and is now a cheeky and loving little boy.
Do please get in touch when you can - it really does help to talk to someone who can really understand what you are going through.
For Robert's story, go on Google and type ROBERT PRICE MORETON MORRELL and you should find an article written 3 years ago.
Now I have found out about you I will read your blog.
Take care, eat as well as you can and try to sleep - you will need as much energy as you can get. Please don't feel guilty about taking a small amount of time away from Logan as you will need some time alone to get your head together at times.
I will be more than happy to be in regular contact if you would like that - and my pc is not often switched off!
With Love from
Jenny.
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