Logan James Wilkieson
Today Mummy told me I have a Blog. Good! More toys to be washed! All my clothes and toys have to be washed before I can play with them. I push things out of my cot and then they come back clean.
Mummy said Uncle Phil had put my blog on a machine which people can read. Will it come back clean? Mummy told me Auntie Katie will put my words in to this machine, I hope they don't shrink!
Today I am in a big building with lots of nice people who keep talking and touching me. Mummy says these are nurses, I think I love my nurses. If I smile they come and talk to me, wait until mummy has shown me to blow kisses.
When I was born Mummy and Daddy forgot to give me a gene? This would have stopped me from getting a sore bum, mouth and eyes (Auntie Katie will tell you about this ( Auntie Katie - Logan has inherited a faulty gene, which prevents his own immmune system developing. Until now his body has been able to fight off diseases and germs as it had some of his mum's immune system in him from when he was born. Now this has gone and anything he get such as nappy rash, thrush in his mouth and conjunctivitus, which are all common in babies he cannot fight off) I don't want Gene in this cot with me, Mummy and Daddy look after me good. My Mouth and bum was sore, glad mummy remembered the right cream to put on
I did not like my milk and started to get hungry, Mummy and Daddy and me had to go and see a man who pushed a sharp bit in me and got some red stuff out. Mummy was told we had to go in a van with two men on a drive through the green fields to this building we are in with my lovely nurses.
Mummy and Daddy have told me I have to stay under my machine all the time (Auntie Katie will explain ( Auntie Katie - As Logan has no immune system, therefore no way of fighting off germs he is being kept in a sterile room. He has what looks like a big extractor fan over his area, this ensures the air he is in is sterile.))Mummy has said lots of people will visit me but they will have to stay behind the gate, its like being in a zoo (I don't know what a zoo is, but I have animals in my cot) Mummy said these people might have germs on them I hope these are toys.
Mummy, Daddy and Grandad are the only ones to come into my space, they MUST have clean clothes on and wash before touching me. They wear silly hats and aprons on which I try to get off.
I had to go in a van and go to sleep, when I woke up they had put some toys on my chest. These toys are for putting medicine in me and for taking red stuff out. My lovely nurses come and play with these, mummy and me counted three tubes.
Mummy and Daddy have told me I will lose my hair. This will stop Mummy using the machine that eats Daddys hair on me. Chemo will make me grumpy and poorly but mummy and daddy will be there, and my lovely nurses, after this I will get some more bone marrow (Auntie Katie will tell you, she is getting good at this( Auntie Katie - Logan is currently recieving steroids and antibiotics to get rid of any outstanding infections he has in his body. Once he is clear of infections he will begin a eight day course of Chemotheraphy this will destroy any existing bone marrow he has. He will then recieve a Bone Marrow transplant.))
I will be here for 4 to 5 months and miss my christmas but Mummy and Daddy have said that my birthday will be twice as good with two lots of toys and a party to see all my friends again. I will tell Auntie Katie what is happening to me so she can update my blog?
I hope you will all leave messages for my Mummy and Daddy to read to me.
Hugs and Kisses
Logan
Saturday 27th October
Daddys back today. He had to work late yesterday. Happy day. Logan No2 is awake more. He's only a baby (Auntie Katie - LoganNo2 was born with Skid's and has never been outside, he is in the same room as Logan lives under the same conditions. Logan No2 is further along with his treatment as he has already recieved his bone marrow transplant)
Sunday 28th October
Grandad, Granny and Auntie Katie came today. Grandad helped today. He's getting better at looking after me. I can still get him to do things for me. Fooled again! They all went out for dinner and left me with Katie, a learner nurse, she's very nice
Monday 29th October
Good day today! My toys in my tummy do not need playing with because I am getting better. Now mummy squirts bannana medicine into my mouth. If I dont put my tongue out!
Tuesday 30th October
I am a star today! Mummy told me I had my picture and story in the Bolton Evening News. My nurses will love me more, I can get star treatment! (More milk!!) Mummy and Daddy tell me I am a star all the time. Auntie Katie says I have loads of messages on my blog ( Still don't know what a blog is) Mummy read them all to me. They are all my friends I love them all and miss seeing them. When I am better I will promise to kiss everybody. More kisses for my girlfriends. I miss kisses! (Auntie Katie - Logan can't recieved contact such as kisses from anyone even his mum and dad as is would pose a high risk of transfering germs)
Wednesday 31st October
Grandad back to help me! We had a bath, me and my ducks. Got Mummy and Grandad wet too. Mummy said I might be on TV. Mummy and Grandad said I would be like Bob The Builder on the box in the corner
I don't want to live in a box and be pushed in the slot at the bottom. Mummy said it would help THE BUBBLE FOUNDATION if I will be on the box. I will take advise of Logan No2 in his bubble next to me. I try to throw my toys at him to share, can't reach yet. We have a talk when no one is in our room.
Grandad and Nanna Wilkieson are comming on Friday to see me.
Thursday 1st November
Granny came today, Doctor Stephen told Mummy they have a match for my bone marrow, four baby tubes will be tested, one will be chosen and made ready for me (See link) It might be in 14 sleeps. Mummy, Daddy, Doctors and Nurses all talk they think I don't understand but I am listening. TV cameras and paper are coming next week to interview me (The star!!) Mummy and Daddy might say something. THE BUBBLE FOUNDATION are coming to help. Mummy says I have to keep saying THE BUBBLE FOUNDATION because they are the charity who support me and provide all my things. Thank You I love them all.
