Logan James Wilkieson
Today Mummy told me I have a Blog. Good! More toys to be washed! All my clothes and toys have to be washed before I can play with them. I push things out of my cot and then they come back clean.
Mummy said Uncle Phil had put my blog on a machine which people can read. Will it come back clean? Mummy told me Auntie Katie will put my words in to this machine, I hope they don't shrink!
Today I am in a big building with lots of nice people who keep talking and touching me. Mummy says these are nurses, I think I love my nurses. If I smile they come and talk to me, wait until mummy has shown me to blow kisses.
When I was born Mummy and Daddy forgot to give me a gene? This would have stopped me from getting a sore bum, mouth and eyes (Auntie Katie will tell you about this ( Auntie Katie - Logan has inherited a faulty gene, which prevents his own immmune system developing. Until now his body has been able to fight off diseases and germs as it had some of his mum's immune system in him from when he was born. Now this has gone and anything he get such as nappy rash, thrush in his mouth and conjunctivitus, which are all common in babies he cannot fight off) I don't want Gene in this cot with me, Mummy and Daddy look after me good. My Mouth and bum was sore, glad mummy remembered the right cream to put on
I did not like my milk and started to get hungry, Mummy and Daddy and me had to go and see a man who pushed a sharp bit in me and got some red stuff out. Mummy was told we had to go in a van with two men on a drive through the green fields to this building we are in with my lovely nurses.
Mummy and Daddy have told me I have to stay under my machine all the time (Auntie Katie will explain ( Auntie Katie - As Logan has no immune system, therefore no way of fighting off germs he is being kept in a sterile room. He has what looks like a big extractor fan over his area, this ensures the air he is in is sterile.))Mummy has said lots of people will visit me but they will have to stay behind the gate, its like being in a zoo (I don't know what a zoo is, but I have animals in my cot) Mummy said these people might have germs on them I hope these are toys.
Mummy, Daddy and Grandad are the only ones to come into my space, they MUST have clean clothes on and wash before touching me. They wear silly hats and aprons on which I try to get off.
I had to go in a van and go to sleep, when I woke up they had put some toys on my chest. These toys are for putting medicine in me and for taking red stuff out. My lovely nurses come and play with these, mummy and me counted three tubes.
Mummy and Daddy have told me I will lose my hair. This will stop Mummy using the machine that eats Daddys hair on me. Chemo will make me grumpy and poorly but mummy and daddy will be there, and my lovely nurses, after this I will get some more bone marrow (Auntie Katie will tell you, she is getting good at this( Auntie Katie - Logan is currently recieving steroids and antibiotics to get rid of any outstanding infections he has in his body. Once he is clear of infections he will begin a eight day course of Chemotheraphy this will destroy any existing bone marrow he has. He will then recieve a Bone Marrow transplant.))
I will be here for 4 to 5 months and miss my christmas but Mummy and Daddy have said that my birthday will be twice as good with two lots of toys and a party to see all my friends again. I will tell Auntie Katie what is happening to me so she can update my blog?
I hope you will all leave messages for my Mummy and Daddy to read to me.
Hugs and Kisses
Logan
Thursday 22nd November
Logan no2 has gone home to day I will miss our chats. Granny and grandad here today granny came on a bus ?, she going to take me on one when I get bigger
Saturday 23rd November
My daddy here today showed him how mummy feeds me thru a tube in my nose, this makes sure I get all my milk because if I have proper food it comes back out
Sunday 24th November
Not a good day very very very tired lots of sleeps, moor red stuff tomorrow
Monday 25th November
Had my red stuff feeling better. I have to have my milk from a machine, it gives me my milk slowly allday. It helps me keep it in my tummy and not over mummy or my nurses
Logan no2 came back today did not see him mummy did.
Tuesday 26th November
I had a good day today nothing came back out of my tummy, grandad here tomorrow
Wednesday 27th November
Had to have my bath after my night sleep, grandad will miss getting wet.I have a sore tummy where my toys are, not my fault promise. Grandad has got me some boats for my bath so I pretended to be in my bath.
Thursday 28th November
Granny came today, I moved my feets two steps all on my own!! Mummy says this is a very very good boy! My hairs are starting to go away, I will have empty bit like Grandad soon! Will I go crinkly like him soon?
2 comments:
Hi Logan,
We read about you in the Bolton News and want to tell you we are thinking about you and send you our very best wishes.
Keep smiling.
Lots and lots of love,
Cathy and Siobhan (Mummy's nursery in New Springs)
Hey little Logan,
Aww, sweetie. I'm so sorry to hear you haven't been very well. Hope you are feeling better again soon.
Glad to hear Logan no2 has gone home, hope he is well.
Keep smiling Logan, you and your family are an inspiration...you just keep going whatever life throws at you.
My thoughts and prayers are with you little guy!
Keep well, and smile it's nearly christmas!
Love Jessica Cooper xxx
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