Logan James Wilkieson
Today Mummy told me I have a Blog. Good! More toys to be washed! All my clothes and toys have to be washed before I can play with them. I push things out of my cot and then they come back clean.
Mummy said Uncle Phil had put my blog on a machine which people can read. Will it come back clean? Mummy told me Auntie Katie will put my words in to this machine, I hope they don't shrink!
Today I am in a big building with lots of nice people who keep talking and touching me. Mummy says these are nurses, I think I love my nurses. If I smile they come and talk to me, wait until mummy has shown me to blow kisses.
When I was born Mummy and Daddy forgot to give me a gene? This would have stopped me from getting a sore bum, mouth and eyes (Auntie Katie will tell you about this ( Auntie Katie - Logan has inherited a faulty gene, which prevents his own immmune system developing. Until now his body has been able to fight off diseases and germs as it had some of his mum's immune system in him from when he was born. Now this has gone and anything he get such as nappy rash, thrush in his mouth and conjunctivitus, which are all common in babies he cannot fight off) I don't want Gene in this cot with me, Mummy and Daddy look after me good. My Mouth and bum was sore, glad mummy remembered the right cream to put on
I did not like my milk and started to get hungry, Mummy and Daddy and me had to go and see a man who pushed a sharp bit in me and got some red stuff out. Mummy was told we had to go in a van with two men on a drive through the green fields to this building we are in with my lovely nurses.
Mummy and Daddy have told me I have to stay under my machine all the time (Auntie Katie will explain ( Auntie Katie - As Logan has no immune system, therefore no way of fighting off germs he is being kept in a sterile room. He has what looks like a big extractor fan over his area, this ensures the air he is in is sterile.))Mummy has said lots of people will visit me but they will have to stay behind the gate, its like being in a zoo (I don't know what a zoo is, but I have animals in my cot) Mummy said these people might have germs on them I hope these are toys.
Mummy, Daddy and Grandad are the only ones to come into my space, they MUST have clean clothes on and wash before touching me. They wear silly hats and aprons on which I try to get off.
I had to go in a van and go to sleep, when I woke up they had put some toys on my chest. These toys are for putting medicine in me and for taking red stuff out. My lovely nurses come and play with these, mummy and me counted three tubes.
Mummy and Daddy have told me I will lose my hair. This will stop Mummy using the machine that eats Daddys hair on me. Chemo will make me grumpy and poorly but mummy and daddy will be there, and my lovely nurses, after this I will get some more bone marrow (Auntie Katie will tell you, she is getting good at this( Auntie Katie - Logan is currently recieving steroids and antibiotics to get rid of any outstanding infections he has in his body. Once he is clear of infections he will begin a eight day course of Chemotheraphy this will destroy any existing bone marrow he has. He will then recieve a Bone Marrow transplant.))
I will be here for 4 to 5 months and miss my christmas but Mummy and Daddy have said that my birthday will be twice as good with two lots of toys and a party to see all my friends again. I will tell Auntie Katie what is happening to me so she can update my blog?
I hope you will all leave messages for my Mummy and Daddy to read to me.
Hugs and Kisses
Logan
Friday 9th November
Bad day today! I went hungry all day, went for a ride in the van and sat about very bored. I normally have a big sleeps but I didn't today! Mummy says it is because the surgeon men were very busy and didn't have time to sort my tummy toys out. Not a happy boy now, because I will have to go hungry again on Monday to try and get my toys mended! This means my chemo wont start till Tuesday. Daddys back tomorrow, I want to show Daddy my dancing.
Saturday 10th November
Daddy back, played all day, showed him how to dance! We did lots of laughing! Mummy has gone to see Auntie Kimmy and Uncle Jonny, Mummy said I have to be good for Daddy. I am always good!! I let him play with my ducks when we had a bath! Watched the dancing on the box, Daddy said it is girly! I don't think it is, will ask Logan No2 later.
Daddy said Grandma is coming to see me tomorrow, I hope she brings Auntie Amy, I can show them how I stand up and how I dance!
4 comments:
Hi Logan
I spoke to grannie on Friday and she told me what has been happening. Sorry that you are hungry but just remember that the next day you'll get lots of your favourite foods! As they say on the girly dancing show on tv "Keep Dancing". Love to you all
Joyce & John
You precious gorgeous little man, i hope everything goes well for you and your mummy and daddy.
Stay cheerful
Ann Thompson
Hiya babes, hope you are doing Ok, sounds like you are in for a tough week, but I am sure you will be Ok, your a little fighter. Give you love to your mummy and daddy, and we are thinking of you all. Love hugs and kisses, Christine, Thomas and Jack xxx
Hi Logan,
Hope everything is going well with your treatment, i also have a little boy who has common variable immune deficiency, he is 11 now and receives his treatment twice a week through a line direct into his belly he is under dr cant who is well known where you are ,you are in the best possible care and the people up there in newcastle will take extra care of you.Good luck with your treatment.
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